May 2012
57 posts
There finally appears to be a member of staff at this hospital who actually gives a shit. A hand on my shoulder and the words “Stay strong, you can beat this.” from the nurse who is looking after me tonight, has done more for me than anything any of the various doctors have done so far.
Tomorrow I have pain management, a neurological consult, and a psychiatric evaluation to look...
Got free coffee for being a cripple. Tastes like a little victory.
Musicians, producers, lyricists, sound designers etc. wanted for a project/collaboration. More details to come soon. Anyone up for something new?
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WatchSo far I’m enjoying the Doepfer A-178 theremin module more as a source of modulation than pitch, but I’ll think of the theremin like every other musical instrument and assume it requires practice.
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Ozric Tentacles →
(Taken with http://cinemagr.am)
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It’s 05:33am on Thursday morning and I have been awake since mid-day on Tuesday. Pain etc. still keeping me up. I went to a brilliant gig earlier on, although I was worried that I’d fall asleep during it due to my exhaustion and sleep depravation, but even after consuming no coffee all day, I’m still here unable to sleep.
Since getting into bed I’ve suffered a mild seizure...
Up late with girl. Girl falls asleep. Decide to hack Android tablet. Get stuck. Give up. Already had root access. Oh.
An open message to the people who bring...
When using public transport with your children, please consider the following facts;
1 // You chose to bring your children into the world.
2 // You have the option of folding your pushchair and placing the child in a seat or on your lap.
3 // The sign in the wheelchair space on London buses reads “Baby buggies can use this area IF IT IS NOT NEEDED BY A WHEELCHAIR USER”
4 // Tutting...
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i have a special friend, we met completely by chance, and now we regularly stay on skype so late into the night that we both fall asleep with the video call still running. it’s weird and i like it and im tired but its worth it.
Techno-Wheelchair →
salutethepoet:
(Taken with http://cinemagr.am)
I am awesome. Today was a bit of an emotional rollercoaster, which fortunately ended on a pleasant high after spending some time being a lot more mobile than I have been for a quite some time.
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LED wheelchair →
(Taken with http://cinemagr.am)
I discovered tonight after having a simple partial seizure during a Skype call, that one of my best and closest friends has an “Adam emergency preparedness kit”.
I’m going through a lot of pretty shitty stuff lately, but having wonderful & caring people in my life makes it all so much easier.
Thank you, you wonderful beast.
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While I was in hospital recently I made friends with an 89 year old guy called Paul.
He was awesome for a few reasons.
1 // He gave me a lollypop. It was a fentanyl lollypop and we both got high as balls on them.
2 // He was dealing with cancer like a complete hard-ass.
3 // He needed to call somebody, so I let him use my iPhone. He looked at the front of it, the back of it, flipped it upside...
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God & Disease.
A woman who has a genetic fault which causes multiple types of cancer just said on a television show about the morals of genetically engineering children something which made me absolutely fucking furious. “The doctor told me that I would pass the gene on to any children I had and that they would get cancer because of it, and they suggested using a donor egg or adopting children instead. My...
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Trying not to get all emotional whilst going through my emergency seizure routine with my parents was very difficult. When I have to take anybody through the list of all the medications I’m on and what has to be done in emergencies, I realise how pathetic and broken I am.
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Anonymous asked: "“A diagnosis?”, said as sarcastically as possible." Hes only trying to help.
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My daily medication intake is becoming absurd.
Oxycodone, Levetiracetam, Pregabalin, Amitriptyline, Zopiclone, Omeprazole & Codeine.
Opioids for chronic pain, anticonvulsants & antidepressants for neuropathic pain, antiepileptics to stop the seizures, hypnotic central nervous system depressants to put me to sleep, proton pump inhibitors to stop all the other drugs from damaging my...
I would really like a hug right now.
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As if being crippled and in constant fucking agony wasn’t enough, then they found out I had a malformation in my brain. I tried to deal with that news, but admittedly I wasn’t doing very well. I did my best to rationalise, looking for a silver lining, wondering if the brain surgery might also help with the neuropathic pain. Then today I suddenly was overwhelmed by a strong smell of...
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